Update on Engnr/Paul's fight with Clyde the Tumour

Jezebel

Core
Engnr/Paul has been suffering from vertigo like symptoms for the last 12 months or so. More recently he has also had major balance issues, inability to walk in a straight line, difficulty getting his words out and significant memory loss. Unfortunately without insurance the cost of an MRI made it impossible to rule out any sort of brain mass. With my new job with CFBISD came insurance and on Friday he finally had the scan. An hour later his doctor called him and asked him to sit down.
The MRI found a large tumour in Paul’s brain that is approximately 4.5cm large. Today we had an appointment with a neurosurgeon. He showed us the MRI image and we were both shocked at its size. However, as brain tumours go Paul has a “good” one. The doctor thinks it is an Ependymoma which is in 99% of cases benign. The tumour is on the base of his brain putting pressure on the 4[SUP]th[/SUP] ventricle and brain stem. Paul’s brain was significantly distorted in shape. He also has a mild case of hydrocephalus, water on the brain, as a result of the position of the tumour restricting the drainage of cerebrospinal fluid.


We are waiting on a surgery date but it will be in the next week hopefully. The surgeon will firstly make a hole in the top of Paul’s skull and place a stent that will go into the chlorid plexus (?), where the cerebrospinal fluid is produced, and release the pressure. Once that’s done they will go through the back of Paul’s neck, remove a 3cm piece of bone and then spread the two hemispheres of the brain to uncover the tumour. Most of it should be fairly easy to remove. Some of it the surgeon is unsure of due to the fact that it goes around a bend. Until they operate they will not be able to determine the consistency of the tumour. If it is soft, like marshmallow, it should come right out. If it is calcified there may be some difficulty with the removal. The tumour is also growing up against the brainstem so if it is adhered or calcified the surgeon said he will leave that portion alone. There was indication on the MRI of some calcification. The surgeon needs to reduce the tumour by approximately 50% or less for the dissection to be to the extent that the rest of Paul’s treatment can be completed via radiotheraphy.


Once the surgery is complete, Paul will be in ICU for 1-2 days, hospital for 3-5 days and then hopefully home to recover. He will also have another MRI after 48 hours to determine how much tumour remains. This will dictate the dosage and length of his radiotheraphy. This will kill the remaining tumour, which fortunately is a type that is very sensitive to radiotherapy.


Once this is done and the tumour is no more, Paul’s prognosis is 100% recovery and no reoccurrence.


Anyone interested in what Paul’s surgery will look like:

[video=youtube;oZKpkQeC1Pg]http://www.youtube.com/watch?v=oZKpkQeC1Pg[/video]
 

JohnnyK

Hardcore
That sounds scary, but OTOH also like major good news! I am sure Paul is in good hands and they'll get this thing out.

Just make sure he gets some cool scars to show off with!

Keep us updated, and all the best!
 

mondo

Hardcore
Best of luck guys.

Paul, when they put you back together, do you get a metal plate in your skull like Jackie Chan?
 

Shilka

Hardcore
This is such good news! I hope everything will go smooth, and you all can put this behind you in the shortest time possible. Wishing you all the best, and thank you for keeping us updated.
 

Wotan

Hardcore
Very good news!

My fiancee suffered from a glioblastoma grade IV which sadly killed her in 2007, 12 months after diagnosis. The brain surgery and recovery in her case went very well (4,5x6x6 behind her left ear), so you should be confident everything will work out fine.

The hole in her skull was closed with the sawed out bone, so propably no metal cap for Paul.
 

Engnr

Moderator
No metal plate, which is a shame. They will remove a 3cm piece of bone at the base of my skull, apparently we do not need this, so they are going to leave it out. Outside of that, my neck muscles will be sore because they are going to unattatch them then reattach them.

Damn Wotan, I can only just start to understand what you are your fiancee went through. I hope she did not suffer much, I think that is what scares me the most, losing my quality of life and having to depend on others to do even the most basic functions of life. She got the bad end of the stick on this whole brain tumor thing.......
 

Wotan

Hardcore
No real suffering thanks to the meds - most of the pain came from the pressure in the skull and that was pretty much over after the surgery. She felt extremely well after the tumor was extracted, all symptoms were gone. (and this is what will happen to you)

For 2 months everything was quite normal, until the regrowth of the glioblastom gradually and ever so slightly worsened her eyesight and degraded her vocabulary - along the way she had a few epileptic fits, and near the end she lost a little control of her left arm, but all in all life quality was pretty good until a week before she passed away.
 

JohnnyK

Hardcore
They should upgrade your CPU while they are in there, Paul.

And Wotan... wow. So sorry for your loss.
 

Engnr

Moderator
Yes, the pressure is a bitch. IDK if it's worse now knowing whats going on or I'm making phantom pains because. It just seems over the weekend it has "worsen". I'm blaming the MRI, the magnets woke Clyde up.
 

tmtm

Admin
Probably because you're aware of it (and thinking about it constantly) whereas before you were probably trying to ignore it and make it go away.

I don't know JK, I think his head is only slotted for a Pentium II.
 

Kenadian

Staff member
Site Admin
I had a TRS-80 from Radio Shack that had more processing power than Engnr will ever have :lol:

I think they'd have go all Steve Austin on his @ss for us to see any noticeable improvement but 6 million dollars doesn't go that far these days. The best he can hope for is a bionic dick.
 

little P

Super Mod
Shit Wotan so sorry to hear that :(

Engy - try and relax, you are in the system now, they will sort you out mate, I tell you one thing though, I'm grateful for our NHS over here...

I want to hear this when it's done from you - "My CPU is a neural net processor; a learning computer." In your best Arnold voice :icon_wink:
 

Wapwap

Staff member
Admin
Good luck Paul, don't worry about it too much.. you'll be fine ;)

Will they also make you a little smarter while they're at it?
 

Engnr

Moderator
I'm requesting the 6 million dollar man package, we will see what I end up with. I think at 6 million, I'm lucky to get a hang nail removed at this day and time.
 

Happyclam

Casual
I'm sorry to hear this, Engie. I hope everything works out ok and I'll be thinking of you. By the time Jeze reads this, you'll either be a vegetable and she's reading it to you in the hopes you respond, or you'll read it yourself and think of what an asshole I am. :)
 

Jezebel

Core
Paul is out of surgery. Surgeon is very pleased - he said the tumour was 'impressive' lol. Definitely an ependymoma and enough was removed to allow the rest to be killed with radiotherapy.
 

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